Come mountain bike or run for Delaney Johnson and all the other children with AHC (Alternating Hemiplegia of Childhood)
From 8:30 AM until 5:00
At Sleepy Hollow Ski and Bike Center
427 Ski Lodge Drive, Huntington
Cost: $75 minimum fundraising goal
Delaney Johnson has a debilitating disorder known as Alternating Hemiplegia of Childhood (AHC) and epilepsy. There is no cure or 100 percent effective treatment for AHC, which is characterized by recurrent episodes of temporary paralysis, often affecting one side of the body (hemiplegia).
Del is a determined and resilient girl who lives life to the fullest. Her beautiful smile and loving personality brings joy to everyone she encounters. Please come out and ride a 22, 10, or 6 mile loop or participate in a 5 mile trail run to support finding a cure for AHC.