The Champlain Valley Down Syndrome Group provides families that have a relative with down syndrome to connect to one another. They run a great monthly FUN group for children and also provide other ways that families can get together. Definitely a great resource in our community!
This is a useful link for getting some ideas about overall life-time costs for a child with Cerebral Palsy. You can also apply their ideas to other disorders. Their site also list some national resources that you might find helpful.
This is a website that offers information about how children with genetic health conditions succeed in school-life. It is a resourceful guide for teachers and parents.
The HIE Help Center is a resource site devoted to
hypoxic-ischemic encephalopathy (HIE), a brain injury that can cause a
wide range of disabilities. The site offers parents information on
treatment, therapy, financial assistance, and daily living.
This is a wonderful site for information related to X & Y chromosome disorders.