This is a useful link for getting some ideas about overall life-time costs for a child with Cerebral Palsy. You can also apply their ideas to other disorders. Their site also list some national resources that you might find helpful.
The Epilepsy Foundation of Vermont is an incredible organization to access if your child has epilepsy. They provide a lot of information and offer support for families that are effected by epilepsy.
This is a website that offers information about how children with genetic health conditions succeed in school-life. It is a resourceful guide for teachers and parents.
The HIE Help Center is a resource site devoted to
hypoxic-ischemic encephalopathy (HIE), a brain injury that can cause a
wide range of disabilities. The site offers parents information on
treatment, therapy, financial assistance, and daily living.
This is a wonderful site for information related to X & Y chromosome disorders.